COCHLEAR IMPLANT: EXPERIENCES OF PARENTS OF DEAF AND HARD-OF-HEARING CHILDREN
Abstract
The paper examines the experiences of parents of deaf and hard of hearing children related to the decision-making process about the cochlear implant, as well as their satisfaction with the outcomes of cochlear implantation. The research was carried out on the sample of 77 examinees of both sexes whose children are rehabilitated at “Children’s House” at the Clinical Hospital Centre in Belgrade, as well at schools for deaf and hard of hearing children in Kragujevac, Subotica and Niš. The questionnaire entitled Children with Cochlear Implants: Parental Perspectives was used for the purpose of the research. The results of the research indicate that parents had moderate difficulties in the process of deciding on cochlear implantation and that they were relatively satisfied with the outcome of the implantation. The age of children and the age at which the cochlear implantation has been performed are not related to the process of deciding on cochlear implantation, although this variable correlates with the contentment with the outcome of the implantation.
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Archbold, S. M., Lutman, M. E., Gregory. S., O’Neill, C., & Nikolopoulos, T. (2002). Parents and Their Deaf Child: their perceptions three years after cochlear implantation. Deafness & Educational International, 4, (1), 12-40. https://doi:10.1002/dei.114
Archbold, S., Sach, T., O'Neill, C., Lutman, M., Gregory, S. (2006). Deciding to Have a Cochlear Implant and Subsequent Aftercare: Parental Perspectives. Deafness and Education International, 8 (4), 190-206. https://doi: 10.1002/dei.201
Archbold, S., Sach, T., O'Neill, C., Lutman, M., & Gregory, S. (2008). Outcomes from cochlear implantation for child and family: Parental perspectives. Deafness & Education International, 10 (3), 120-142. https://doi.org/10.1002/dei.243
Bat-Chava, Y., Martin, D., & Kosciw, J. (2005). Longitudinal improvements in communication and socialization of deaf children with cochlear implants and hearing aids: Evidence from parental reports. Journal of Child Psychology and Psychiatry, 46 (12), 1287–1296. https://doi:10.1111/j.1469-7610.2005.01426.x
Blamey, P. J., Sarant, J. Z., Paatsch, L. E., Barry, J. G., Bow, C. P., Wales, R. J., Wright, M., Psarros, C., Rattigan, K., & Tooher, R. (2001). Relationships among speech perception, production, language, hearing loss, and age in children with impaired hearing. Journal of speech, language, and hearing research, 44(2), 264–285. https://doi.org/10.1044/1092-4388(2001/022)
Burger, T., Spahn, C., Richter, B., Eissele, S., Lohle, E., & Bengel, J. (2005). Parental distress: The initial phase of hearing aid and cochlear implant fitting. American Annals of the Deaf, 150 (1), 5–10. https://doi.org/10.1353/aad.2005.0017
Connor, C. M., Craig, H. K., Raudenbush, S. W., Heavner, K., & Zwolan, T. A. (2006). The age at which young deaf children receive cochlear implants and their vocabulary and speech-production growth: Is there an added value for early implantation? Ear and Hearing, 27(6), 628-644. https://doi.org/10.1097/01.aud.0000240640.59205.42
Cox, R. M., & Alexander G. C. (1999). Measuring satisfaction with amplification in daily life: the SADL scale. Ear and Hearing, 20 (4), 306-320. https://doi: 10.1097/00003446-199908000-00004
Christiansen, J. B., & Leigh, I. W. (2004). Children With Cochlear Implants Changing Parent and Deaf Community Perspectives. Archives of Otolaryngology-Head & Neck Surgery, 130(5), 673-7. https://doi: 10.1001/archotol.130.5.673.
Damen, G., Krabbe, P., Archbold, S., & Mylanus, E. (2007). Evaluation of the Parental Perspective instrument for pediatric cochlear implantation to arrive at a short version. International Journal of Pediatric Otorhinolaryngology, 71 (3), 425-433. https://doi: 10.1016/j.ijporl.2006.11.008
Dankuc, Dragan; Vlaški, Ljiljana; Pejaković, Nemanja; Mrđanov, Vladimir. (2015). Komplikacije kohlearne implantacije u kliničkom centru Vojvodine. Srpski arhiv za celokupno lekarstvo, 143 (11-12), 656-661. https://doi: 10.2298/SARH1512656D
Dowell, R. C., Dettman, S. J., Blamey, P. J., Barker, E. J., & Clark, G. M. (2002). Speech perception in children using cochlear implants: prediction of long-term outcomes. Cochlear implants international, 3(1), 1–18. https://doi.org/10.1179/cim.2002.3.1.1
Duchesne, L., & Marschark, M. (2019). Effects of age at cochlear implantation on vocabulary and grammar: A review of the evidence. American Journal of Speech-Language Pathology, 28 (4), 1673-1691. https://doi.org/10.1044/2019_AJSLP-18-0161
Duncan, J. (2009). Parental readiness for cochlear implant decision-making. Cochlear Implants International, 10(1), 38–42. https://doi:10.1002/cii.384
Eisen, M. (2009). The history of cochlear implants. In J. K. Niparko (Ed.), Cochlear Implants: Principles and Practices (89-93). Philadelphia, PA: Lippincott Williams & Wilkins.
Fortunato-Tavares, T., Befi-Lopes, D., Ferreira Bento, R., & Furquim de Andrade, C. (2012). Children with cochlear implants: communication skills and quality of life. Brazilian Journal of Otorhinolaryngology, 78(1), 13-25. https://doi:10.1590/s1808-86942012000100003
Govaerts, P. J., De Beukelaer, C., Daemers, K., De Ceulaer, G., Yperman, M., Somers, T., Schatteman, I., & Offeciers, F. E. (2002). Outcome of cochlear implantation at different ages from 0 to 6 years. Otology & neurotology : official publication of the American Otological Society, American Neurotology Society [and] European Academy of Otology and Neurotology, 23(6), 885–890. https://doi.org/10.1097/00129492-200211000-00013
Hassuji, R.M. (2019). Parental Perspective Pre- and Post-Cochlear Implantation in Tanzania, Scholarly Journal Of Otolaryngology, 3(2), 226-233. https://doi: 10.32474/SJO.2019.03.000156
Hawker, K., Ramirez-Inscoe, J., Bishop, D. V., Twomey, T., O’Donoghue, G. M., & Moore, D. R. (2008). Disproportionate language impairment in children using cochlear implants. Ear and Hearing, 29(3), 467–471. https://doi: 10.1097/AUD.0b013e318167b857
Holt, R. & Kirk, K. (2005). Speech and language development in cognitively delayed children with cochlear implants. Ear and Hearing, 26(2), 132-148. https://doi:10.1097/00003446-200504000-00003
Huttunen, K., Rimmanen, S., Vikman, S., Virokannas, N., Sorri, M., Archbold, S., Lutman, M. E. (2009). Parents' views on the quality of life of their children 2-3 years after cochlear implantation. International Journal of Pediatric Otorhinolaryngology, 73(12), 1786-1794. https://doi: 10.1016/j.ijporl.2009.09.038
Huttunen, K., Välimaa, T. (2010). Parents' Views on Changes in Their Child's Communication and Linguistic and Socioemotional Development After Cochlear Implantation, The Journal of Deaf Studies and Deaf Education, 15(4), 383–404. https://doi.org/10.1093/deafed/enq029
Hyde, M., Punch, R., & Komesaroff, L. (2010a). Coming to a decision about cochlear implantation: Parents making choices for their deaf children. Journal of Deaf Studies and Deaf Education, 15(2), 162-178. https://doi: 10.1093/deafed/enq004
Hyde, M.; Punch, R. & Komesaroff, L. (2010b). A comparison of the anticipated benefits and received outcomes of pediatric cochlear implantation: Parental perspectives. Gallaudet University Press: American Annals of the Deaf, 155(3), 322-38. https://doi: 10.1353/aad.2010.0020
Incesulu, A., Vural, M., & Erkam, U. (2003). Children with Cochlear Implants: Parental Perspective. Otology Neurotology, 24(4), 605–11. https://doi: 10.1097/00129492-200307000-00013
Inscoe, J. R., Odell, A., Archbold, S., & Nikolopoulos, T. (2009). Expressive spoken language development in deaf children with cochlear implants who are beginning formal education. Deafness and Education International, 11(1), 39–55. https://doi.org/10.1002/dei.252
Kluwin, T. N., & Stewart, D. A. (2000). Cochlear implants for younger children: a preliminary description of the parental decision process and outcomes. American annals of the deaf, 145(1), 26–32. https://doi.org/10.1353/aad.2012.0247
Li, Y., Bain, L., & Steinberg, A. G. (2003). Parental decision making and the choice of communication modality for the child who is deaf. Archives of Pediatrics & Adolescent Medicine, 157(2), 162–168. https://doi:10.1001/archpedi.157.2.162
Li, Y., Bain, L., & Steinberg, A. G. (2004). Parental decision-- making in considering cochlear implant technology for a deaf child. International Journal of Pediatric Otorhinolaryngology, 68(8),1027–1038. https://doi:10.1016/j.ijporl.2004.03.010
Miyamoto, R. T., Houston, D. M., & Bergeson, T. (2005). Cochlear implantation in deaf infants. The Laryngoscope, 115(8), 1376–1380. https://doi.org/10.1097/01.mlg.0000172039.26650.9b
Nicholas, J. G, Geers, A. E. (2003). Personal, social, and family adjustment in school-aged children with a cochlear implant. Ear and Hearing, 24(1), 69–81. https://doi. 10.1097/01.AUD.0000051750.31186.7A
Nikolopoulos, T.P, Lloyd, H. Archbold, S., O' Donoghue, G. (2001). Paediatric Cochlear Implantation: The Parents’ Perspective. Archives of Otolaryngology-Head & Neck Surgery, 127(4), 363–367. https://doi:10.1001/archotol.127.4.363
O'Donoghue, G. M., Nikolopoulos, T. P., & Archbold, S. M. (2000). Determinants of speech perception in children after cochlear implantation. Lancet (London, England), 356(9228), 466–468. https://doi.org/10.1016/S0140-6736(00)02555-1
Piazza, E., Kandathil, C., & Carron, J. D. (2009). Parental expectations and outcomes of pediatric cochlear implantation. Journal of the Mississippi State Medical Association, 50(10), 331–336.
Pisoni, D. B., Conway, C. M., Kronenberger, D. L., Horn, J. K., & Henning, S. C. (2008). Efficacy and effectiveness of cochlear implants in deaf children. In M. Marschark & P. C. Hauser (Eds.), Deaf cognition: Foundations and outcomes (pp. 52–101). New York: Oxford University Press.
Purdy, S. C., Chard, L. L., Moran, C. A., & Hodgson, S. A. (1995). Outcomes of cochlear implants for New Zealand children and their families. Annals of Otology, Rhinology, and Laryngology, 166. 102–105.
Radić-Šestić, M.,Šešum, M. i Isaković, Lj. (2018). Činioci odlučivanja roditelja za kohlearnu implantaciju i njihovog zadovoljstva ishodima rehabilitacije [Factors of parents' decision for cochlear implantation and their satisfaction with rehabilitation outcomes]. Specijalna edukacija i rehabilitacija, 17(2), 213-232. https://doi:10.5937/specedreh17-16498
Robbins, A., Svirsky, M., & Kirk, K. (1997). Children with implants can speak, but can they communicate? Otolaryngology – Head and Neck Surgery, 117(3), 155-160.
Sach, T., & Whynes, D. (2005). Pediatric cochlear implantation: The views of parents. International Journal of Audiology, 44(7), 400–407. https://doi.org/10.1080/14992020500146500
Spahn, C., Burger, T., Löschmann, C. & Richter, B. (2004). Quality of life and psychological distress in parents of children with a cochlear implant. Cochlear Implants International, 5(1), 13-27. https://doi: 10.1080/14670100.2004.11873747
Spahn, C., Richter, B., Burger, T., Löhle, E., & Wirsching, M. (2003). A comparison between parents of children with cochlear implants and parents of children with hearing aids regarding parental distress and treatment expectations. International journal of pediatric otorhinolaryngology, 67(9), 947–955. https://doi.org/10.1016/s0165-5876(03)00160-5
Spencer, P. (2004). Individual differences in language performance after cochlear implantation at one to three years of age: Child, family, and linguistic factors. Journal of Deaf Studies and Deaf Education, 9(4), 395–412. https://doi: 10.1093/deafed/enh033
Spencer, P., & Marschark, M. (2003). Cochlear implants: Issues and implications. In M. Marschark (Ed.), Oxford handbook of deaf studies, language, and education (pp. 434–448). New York: Oxford University Press.
Stacey, P. C., Fortnum, H. M., Barton, G. R., & Summerfield, A. Q. (2006). Hearing-impaired children in the United Kingdom, I: Auditory performance, communication skills, educational achievements, quality of life, and cochlear implantation. Ear and hearing, 27(2), 161–186. https://doi.org/10.1097/01.aud.0000202353.37567.b4
Steinberg, A., Delgado, G., Bain, L., Li, Y., & Ruperto, V. (2003). Decisions Hispanic families make after the identification of deafness. Journal of Deaf Studies and Deaf Education, 8(3), 291–314. https://doi: 10.1093/deafed/eng016
Svirsky, M. A., Robbins, A. M., Kirk, K. L., Pisoni, D. B., & Miyamoto, R. T. (2000). Language development in profoundly deaf children with cochlear implants. Psychological Science, 11(2), 153–158. https://doi: 10.1111/1467-9280.00231
Swanwick, R., & Tsverik, I. (2007). The role of sign language for deaf children with cochlear implants: Good practice in sign bilingual settings. Deafness and Education International, 9(4), 214-231. https://doi: 10.1002/dei.226
US Food and Drug Administration. (2006). Guidance for industry. Patient-reported outcome measures: use in medical product development for labeling claims. Rockville (MD): US Food and Drug Administration, 1-32.
Watson, L. M., Hardie, T., Archbold, S. M., & Wheeler, A. (2008). Parents’ views on changing communication after cochlear implantation. Journal of Deaf Studies and Deaf Education, 13(1). 104–116. https://doi.org/10.1093/deafed/enm036
Weisel, A., Most, T., & Michael, R. (2007). Mother’s stress and expectations as a function of time since child’s cochlear implantation. Journal of Deaf Studies and Deaf Education, 12(1), 55–64. https://doi.org/10.1093/deafed/enl020
Wheeler, A. (Ed.) (2008). Deafblindness and cochlear implantation. Nottingham, United Kingdom: The Ear Foundation and Sense.
DOI: https://doi.org/10.22190/TEME181023028R
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